Motor Neurone Disease Awareness Month takes place each June and its purpose is to help raise awareness of this disease across the country. The event is organised by the Motor Neurone Disease Association. The organisation has nearly 8 000 members and over 3 000 active volunteers in England, Wales and Northern Ireland and, all dedicated to improving the lives of people affected by MND, now and in the future.
Around 85-90% people with MND is experiencing the communication problems and losing their voice. During MND Awareness Month MNDA is encouraging people to take part in Silent Speaks initiative – to get creative and get the other way to communicate without using their own voice. You can choose how long you want to be silent for and your target sponsorship. Here you can find the tips and hints, and the information how to get started.
Here are some inspiring silent challenges that are happening this month:
Jo and her 4 year old daughter, Hope.
Jo is aiming for 24 hours silent and ‘chatterbox’ Hope is aiming for 15 minutes. Read Jo’s story and donate here – http://bit.ly/1ePz9Cy
Hayley, who is raising money for her father who is living with MND. Hayley is aiming for a fantastic 5 days silent, that’s 120 hours. Read Hayley’s story and donate here – http://bit.ly/1AKkenb
9 year old Shea
Shea is raising money by participating in #SilenceSpeaks, in memory of his Father, John. His initial target was £75 but he has now raised an amazing £1,175 – http://bit.ly/1I52oxM
Lynn and Sally’s Silent Challenge
Team Maureen have completed 7 whole days silent challange – that’s 168 hours! You can read their blog, outlining their experiences and the problems they encountered caused by living in silence. Click here to read more: http://bit.ly/1GuR9yl
ASLTIP’s membership has been growing rapidly since 1989. We are a support organisation run by our members. The executive board is always grateful for new members and new ideas.Apply for a membership